This blog post summarizes the key highlights of the Digital Immunization Passport (DIP) project. We implemented and evaluated an end-to-end workflow for handling immunization information in a human-centric way, and we provided the necessary infrastructure for all participating stakeholders to demonstrated the functionality in real-world use cases: Yellow Fever and Tick-borne encephalitis vaccination. The project […]

In the DECTS project – funded by NGI TRUST Grant Agreement No. 825618 – OwnYourData and DEC112 implemented a Proof-of-Concept to demonstrate sharing personal data between an emergency caller and a control room.

Problem Description

The DEC112 App for deaf emergency chats allows users to store personal information (profile data) at the phone to be automatically shared with an operator in a control room when an emergency chat is initiated. But storing this profile data has a few disadvantages like inability to migrate this data when switching phones and also security concerns (anyone gaining access to this phone can read and edit the data). It therefore makes sense to also provide an option to store this emergency information securely in the cloud which in turn generates several challenges:

• referencing and accessing emergency information in the cloud
• migrating between cloud storage providers (GDPR Article 20 – Right to Data Portability)
• guaranteeing secure storage of profile data

This blog posts describes the implementation of managing profile data in a Personal Data Store addressing the above-mentioned challenges.

Self Sovereign Identity

Decentralized Identifiers (DID) provide an elegant and self-determined way of managing access to personal data. Using cryptographic methods and blockchain technology a user can generate a DID (i.e., a unique token) that references a DID Document. In this document a service endpoint can be specified that provides a certain type of service. Since only the user is in possession of the cryptographic key to manage the DID Document it can be edited only by this user.

For the given use case of deaf emergency chats the DEC112 app automatically generates a DID at user registration and to reference an account in the OwnYourData Data Vault (source available here: https://github.com/OwnYourData/oyd-pia2). The user has the option to choose between storing the data on the phone or in a Personal Data Store and when choosing Personal Data Store the respective DID is shown on the Profile page.

 

Shamir’s Secret Sharing

The OwnYourData Data Vault is a Personal Data Store that recently received the MyData Operator Status and is used as the default cloud storage for personal information associated with an DEC112 user account. Since it stores personal data End-to-End encrypted it was necessary to develop a solution to exchange this encrypted data with a control room. The component that manages data provisioning in case of an emergency chat is called PI2 (Personal Identifiable Information) – source code available here: https://github.com/OwnYourData/service-pi2.

Upon creating an account in the OwnYourData Data Vault two key parts a created using the Shamir Secret Sharing scheme. One key part remains in the Data Vault while the other key part is sent to all participating PI2 services located in the respective control rooms. The profile data can only be decrypted when both key parts come together. Additionally, the Personal Data Stores logs any access to the encrypted profile data to guarantee complete documentation.

The data flow for accessing profile data during an emergency chat is displayed in the following sequence diagram.

The basic steps in providing personal information upon initiating an emergency chat include:

1. The Viewer (client-side application used by the Call Taker) requests from PI2 additional information about the Emergency Call based on the DID delivered along the emergency chat.
2. PI2 resolves the DID (i.e., retrieves the DID document) and gets the service endpoint of the PDS holding emergency information
3. PDS sends encrypted emergency information together with one key part for decryption
4. PI2 combines stored and provided key parts to decrypt emergency information and responds to Call Taker

Conclusions

This blog post described the infrastructure to share data in a secure and self-determined way. Users leverage capabilities of DIDs to manage a trusted service endpoint and use Shamir’s Secret Sharing scheme for a purpose-based data provisioning. A working prototype was implemented for the DEC112 project in Austria.

A bold new initiative to shape the new normal of data has arrived – MyData Operator 2020 status awarded to OwnYourData.

In July 2020, OwnYourData was awarded the inaugural status of MyData Operator 2020. The award was given to 16 world-leading organisations from 12 countries, all working for humans-centric approaches to personal data.

A MyData operator, as described in the white paper Understanding MyData Operators, is a provider of infrastructure for personal data management and a key element in creating sustainable ecosystems for fair and ethical use of personal data.  MyData operators provide interoperability at the technical, informational and governance levels to support the flow of personal data across services. They are examples of a human-centric approach to what the recent EU data strategy calls “novel data intermediaries” and which are set to play a critical role in the provision of the strategy’s vision of data spaces.

Radical collaboration for human-centric data control

The awarded organisations are working together with their competitors on areas of mutual interest to create a successful, interoperable personal data ecosystem. “MyData Global congratulates awardees for their integrity, dedication, and openness in this unprecedented sharing of information that goes far beyond the requirements of any regulation. Ultimately, it is individuals who will benefit from this shared understanding of MyData operators – with increased transparency, better choices, and more innovative, responsible services,” explains Joss Langford, co-lead of the MyData Operators Thematic Group and the lead editor for Understanding MyData Operators white paper.

More information

The organisations awarded the MyData Operator 2020 status are listed here: mydata.org/operators/

The MyData Operator 2020 Award was created by the internationally recognised nonprofit MyData Global. The award acknowledges organisations that place the individual at the centre of personal data about them, provide tools to help them manage personal data, and have the individual as the primary beneficiary of this data.